Friday, December 5, 2014

Lyme disease, cognitive impairment and the battle for words .

I search the internet for words to help ,so my ,clients , friends and family can understand what damage has happen to my brain because of late stage nuerological Lyme disease. These are things I struggle with daily . It's very hard for me to write this , as I am a prideful person , but I am ready and I want to be part of life again , and communicate with others, to laugh again , and create my beloved art work . 

* cognitive impairment .....I may not understand what you are saying to me , you may need to say it in 
                                         Different way . 
* attention and memory loss ....there is no way I will understand you if you talk fast and I may need to  
                                                 Write things down as I forget a lot of information . 
*slow process speed .....I can not answer you fast and may need help along the way 
*word finding difficulty .....this is a big one for me , I have a very hard time with finding words . They 
                                         Seem loss and come out wrong 
*auditory processing difficulties .... If there is music or noise in the back ground , I may not understand 
                                                      Your words 
* Mental Flexibility .... I can not multi task , it is so very hard for me 
*speed of information processing .... Please talk slow and clearly for me to understand you . 
* language ..... When I write the written word ,  I may skip words and spell things wrong . You may 
                         Need to read between the lines . I am always open to questions at any time about anything . 
                      . 
                     



3 comments:

  1. I'm so sorry you are dealing with this. :( I have Fibro and Lupus which both do this to me also. I get to make comebacks when the flare goes away which isn't often. Will keep you in prayer and positive healing energy

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  2. Thank you for sharing your journey with us, Pam. I love hearing about you and Anita, the garlic, the pups, the art, the jewelry, and the beauty of your world here in Maine. You are an inspiring couple, and your art.. your art.. I have never seen anyone capture dogs' personalities like you do. Thank you for all you do and are. <3

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  3. oh, pam, you are so smart & aware of what this disease has done to you. i'm so impressed that you laid it all out for us to see. it's painful on my end, too, because it hurts you. love you. xo

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